Technical and Policy Approaches to Balancing Patient Privacy and Data Sharing in Clinical and Translational Research
Technical and Policy Approaches to Balancing Patient Privacy and Data Sharing in Clinical and Translational Research
B. Malin,D. Karp,R. Scheuermann
2010 · DOI: 10.2310/JIM.0b013e3181c9b2ea
Journal of Investigative Medicine · 114 Citations
TLDR
This work recounts a recent privacy-related concern associated with the publication of aggregate statistics from pooled genome-wide association studies that have had a significant impact on the data sharing policies of National Institutes of Health-sponsored databanks.
