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Technical and Policy Approaches to Balancing Patient Privacy and Data Sharing in Clinical and Translational Research

B. Malin,D. Karp,R. Scheuermann

2010 · DOI: 10.2310/JIM.0b013e3181c9b2ea
Journal of Investigative Medicine · 114 Citations

TLDR

This work recounts a recent privacy-related concern associated with the publication of aggregate statistics from pooled genome-wide association studies that have had a significant impact on the data sharing policies of National Institutes of Health-sponsored databanks.