Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations
C. Coleman,Olivia Fulton,6 Authors,P. Powell
TLDR
A set of principles is developed that provide guidance on how to address key challenges when planning and conducting patient and public involvement in order to develop successful partnerships with patients and drive forward patient-centred research.
Abstract
Patient and public involvement in research is increasingly considered a cornerstone of good research practice, and the research community recognises people with lived experience as valuable stakeholders within the research process. European Respiratory Society (ERS) strongly encourages patient input into its research programme and scientific activities, working in partnership with the European Lung Foundation (ELF) to facilitate this. Based on the ERS and ELF experience and best practice in the field of patient and public involvement, we developed a set of principles to which future ERS and ELF collaborations should adhere. These principles provide guidance on how to address key challenges when planning and conducting patient and public involvement in order to develop successful partnerships with patients and drive forward patient-centred research. This set of principles aims to help researchers and patients address some common challenges of patient and public involvement in research, with practical tools to develop successful patient–professional partnerships https://bit.ly/3HQpVXi
