Preparing for patient partnership: A scoping review of patient partner engagement and evaluation in research
Preparing for patient partnership: A scoping review of patient partner engagement and evaluation in research
M. Bird,Carley Ouellette,7 Authors,S. Carroll
2020 · DOI: 10.1111/hex.13040
Health Expectations · 198 Citations
TLDR
Patient partnership in research requires a shift from patient participation in ancillary roles to engagement as contributing members of research teams, and impact is rarely measured.
Abstract
Realizing patient partnership in research requires a shift from patient participation in ancillary roles to engagement as contributing members of research teams. While engaging patient partners is often discussed, impact is rarely measured.